Chromosome Deletion Outreach, Inc. (CDO)
Non-profit voluntary support group for families affected by rare chromosome disorders.
Chromosome Help-Station
Information on rare chromosomal disorders. Support and advice for families.
Cornelia de Lange Syndrome (CdLS) Foundation Outreach
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people wi…
Forum for Patients with Myotonic Dystrophy 2
A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
Online Genetic Syndrome Support Groups
Sites are listed alphabetically by disease/condition.
Oto-Palatal-Digital Syndrome Family Resource Network
Resources, articles, support and general information on the rare disorder, Oto-Palatal-Digital Syndrome.
Thomas Scott Davidson
This is a memorial website for Thomas Scott Davidson who died from Anencephaly.
Trisomy 18 Support Online Community
Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
Unique Rare Chromosome Disorder Support Group
Support and information for families of children with rare disorders.
Yahoo Groups Floating Harbor
An active support site for the parents and families of children with Floating Harbor Syndrome.