https://e-sygoing.link Latest links in the Genetic Disorders category en-us Sun, 24 May 2026 11:34:27 -0400 https://e-sygoing.link/link/5806543-unique-rare-chromosome-disorder-support-group Support and information for families of children with rare disorders. Tue, 28 Apr 2026 03:16:31 -0400 https://e-sygoing.link/go/5806543 https://e-sygoing.link/link/5806554-oto-palatal-digital-syndrome-family-resource-network Resources, articles, support and general information on the rare disorder, Oto-Palatal-Digital Syndrome. Wed, 13 Aug 2025 13:09:11 -0400 https://e-sygoing.link/go/5806554 https://e-sygoing.link/link/5806558-trisomy-18-support-online-community Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey. Fri, 09 May 2025 14:47:53 -0400 https://e-sygoing.link/go/5806558 https://e-sygoing.link/link/5806546-ideas A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15). Sun, 04 May 2025 08:18:26 -0400 https://e-sygoing.link/go/5806546 https://e-sygoing.link/link/5806544-soft Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts. Thu, 09 Jan 2025 02:52:33 -0500 https://e-sygoing.link/go/5806544 https://e-sygoing.link/link/5806545-cornelia-de-lange-syndrome-cdls-foundation-outreach Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime. Thu, 05 Dec 2024 09:10:03 -0500 https://e-sygoing.link/go/5806545 https://e-sygoing.link/link/5806538-online-genetic-syndrome-support-groups Sites are listed alphabetically by disease/condition. Tue, 08 Oct 2024 22:39:59 -0400 https://e-sygoing.link/go/5806538 https://e-sygoing.link/link/5806552-forum-for-patients-with-myotonic-dystrophy-2 A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2. Tue, 10 Sep 2024 03:14:01 -0400 https://e-sygoing.link/go/5806552 https://e-sygoing.link/link/5806542-soft A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders. Wed, 31 Jul 2024 23:15:47 -0400 https://e-sygoing.link/go/5806542 https://e-sygoing.link/link/5806547-yahoo-groups-floating-harbor An active support site for the parents and families of children with Floating Harbor Syndrome. Sat, 13 Jul 2024 16:20:30 -0400 https://e-sygoing.link/go/5806547