Advancement of Research for Myopathies
A non-profit organization with the primary goal of speeding up bio-medical research on IBM2, the Autosomal Recessive form of Hereditary Inclusion Body Myopathies (HIBM). Includes a…
Familial Desminopathy
Desmin related myopathy is a disorder characterized by accumulation of desmin in the muscle cells. It can be dominantly inherited or occur spontaneously, its effects can range fro…
Myopathy and neuromuscular junction disorders
Detailed information on some of the muscle diseases.
Myotubular Myopathy Resource Group
Information and support for parents and medical professionals about x-linked, autosomal recessive, and autosomal dominant forms of MTM. Includes a web-based discussion group, newsl…
Neuromuscular Home Page
Comprehensive professional resource at Washington University School of Medicine
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