https://e-sygoing.link Latest links in the Myopathies category en-us Sun, 24 May 2026 20:41:05 -0400 https://e-sygoing.link/link/5777717-nemaline-myopathy Information and contacts regarding Nemaline Myopathy Sun, 19 Apr 2026 03:42:30 -0400 https://e-sygoing.link/go/5777717 https://e-sygoing.link/link/5777714-myopathy-and-neuromuscular-junction-disorders Detailed information on some of the muscle diseases. Thu, 18 Sep 2025 20:22:32 -0400 https://e-sygoing.link/go/5777714 https://e-sygoing.link/link/5777721-familial-desminopathy Desmin related myopathy is a disorder characterized by accumulation of desmin in the muscle cells. It can be dominantly inherited or occur spontaneously, its effects can range from mild to severe. Sun, 10 Aug 2025 09:36:33 -0400 https://e-sygoing.link/go/5777721 https://e-sygoing.link/link/5777722-advancement-of-research-for-myopathies A non-profit organization with the primary goal of speeding up bio-medical research on IBM2, the Autosomal Recessive form of Hereditary Inclusion Body Myopathies (HIBM). Includes a message board. Tue, 07 Jan 2025 14:09:56 -0500 https://e-sygoing.link/go/5777722 https://e-sygoing.link/link/5777712-neuromuscular-home-page Comprehensive professional resource at Washington University School of Medicine Wed, 01 Jan 2025 17:24:50 -0500 https://e-sygoing.link/go/5777712 https://e-sygoing.link/link/5777723-myotubular-myopathy-resource-group Information and support for parents and medical professionals about x-linked, autosomal recessive, and autosomal dominant forms of MTM. Includes a web-based discussion group, newsletter, FAQs, articles, tips, current research, and family stories. Wed, 06 Mar 2024 01:40:02 -0500 https://e-sygoing.link/go/5777723