https://e-sygoing.link Latest links in the Ehlers-Danlos Syndrome category en-us Sun, 24 May 2026 16:12:45 -0400 https://e-sygoing.link/link/5786379-eds-today The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide. Wed, 05 Nov 2025 05:06:56 -0500 https://e-sygoing.link/go/5786379 https://e-sygoing.link/link/5786383-the-hypermobility-syndrome-association HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, message boards, and much more. Fri, 31 Oct 2025 13:47:45 -0400 https://e-sygoing.link/go/5786383 https://e-sygoing.link/link/5786375-ehlers-danlos-syndrome-support-group This site offers extensive information for patients and doctors, plus links. Fri, 24 Oct 2025 01:13:14 -0400 https://e-sygoing.link/go/5786375 https://e-sygoing.link/link/5786401-voluntary-recall-of-vioxx Press release about the recall of Vioxx, a drug commonly used to treat EDS-related arthritis. If you have been taking this medication please contact your doctor immediately for instructions. Tue, 12 Aug 2025 18:32:25 -0400 https://e-sygoing.link/go/5786401 https://e-sygoing.link/link/5786399-china-doll-syndrome Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included. Sun, 06 Jul 2025 23:26:18 -0400 https://e-sygoing.link/go/5786399 https://e-sygoing.link/link/5786398-emedicine-ehlers-danlos-syndrome Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments. Tue, 18 Mar 2025 14:54:23 -0400 https://e-sygoing.link/go/5786398 https://e-sygoing.link/link/5786392-department-of-pathology Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS. Tue, 11 Mar 2025 14:28:15 -0400 https://e-sygoing.link/go/5786392 https://e-sygoing.link/link/5786393-ehlers-danlos-syndrome-medical-information Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more. Tue, 11 Feb 2025 04:49:27 -0500 https://e-sygoing.link/go/5786393 https://e-sygoing.link/link/5786396-oral-manifestations-of-ehlers-danlos-syndrome EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail. Fri, 31 Jan 2025 08:11:47 -0500 https://e-sygoing.link/go/5786396 https://e-sygoing.link/link/5786397-sandy-simmons-connective-tissue-disorder-site Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others) Mon, 27 Jan 2025 22:05:16 -0500 https://e-sygoing.link/go/5786397