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    <title>The Ryan Foundation</title>
    <link>https://e-sygoing.link/link/5783377-the-ryan-foundation</link>
    <description>A non-profit, all-volunteer organization dedicated to supporting research for, and the families of, those suffering from Mucopolysaccharidosis, or MPS. Find disease info, articles and links.</description>
    <pubDate>Tue, 23 Dec 2025 04:43:07 -0500</pubDate>
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    <title>Genetic Interest Group</title>
    <link>https://e-sygoing.link/link/5783371-genetic-interest-group</link>
    <description>Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.</description>
    <pubDate>Sat, 08 Nov 2025 08:18:24 -0500</pubDate>
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    <title>Lysosomal  Diseases New Zealand</title>
    <link>https://e-sygoing.link/link/5783370-lysosomal-diseases-new-zealand</link>
    <description>Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.</description>
    <pubDate>Mon, 23 Dec 2024 00:07:38 -0500</pubDate>
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    <title>American Society of Genetic Disorders</title>
    <link>https://e-sygoing.link/link/5783375-american-society-of-genetic-disorders</link>
    <description>Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics.</description>
    <pubDate>Thu, 05 Sep 2024 22:47:32 -0400</pubDate>
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    <title>Dana&#039;s Angels Research Trust</title>
    <link>https://e-sygoing.link/link/5783376-danas-angels-research-trust</link>
    <description>Information from this charitable organization on Niemann-Pick Type C disease and how individuals can contribute funds for research for this fatal childhood disease.</description>
    <pubDate>Tue, 05 Mar 2024 23:18:27 -0500</pubDate>
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