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  <title>e-sygoing.link — Shwachman Syndrome</title>
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  <description>Latest links in the Shwachman Syndrome category</description>
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    <title>NORD: Shwachman Syndrome</title>
    <link>https://e-sygoing.link/link/5783346-nord-shwachman-syndrome</link>
    <description>Offers a general discussion, the synonyms and further resources.</description>
    <pubDate>Wed, 29 Apr 2026 03:41:02 -0400</pubDate>
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    <title>Shwachman-Diamond Syndrome International</title>
    <link>https://e-sygoing.link/link/5783343-shwachman-diamond-syndrome-international</link>
    <description>Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.</description>
    <pubDate>Mon, 12 Jan 2026 14:40:07 -0500</pubDate>
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    <title>Shwachman Syndrome</title>
    <link>https://e-sygoing.link/link/5783342-shwachman-syndrome</link>
    <description>A mothers story to diagnose this disorder before a team of doctors could.</description>
    <pubDate>Thu, 10 Apr 2025 04:52:03 -0400</pubDate>
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    <title>Shwachman-Diamond Syndrome Family/Friends</title>
    <link>https://e-sygoing.link/link/5783345-shwachman-diamond-syndrome-familyfriends</link>
    <description>An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome.</description>
    <pubDate>Sat, 01 Mar 2025 08:15:20 -0500</pubDate>
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    <title>Shwachman-Diamond America</title>
    <link>https://e-sygoing.link/link/5783344-shwachman-diamond-america</link>
    <description>Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.</description>
    <pubDate>Sun, 23 Feb 2025 14:54:32 -0500</pubDate>
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    <title>Katie&#039;s Journey</title>
    <link>https://e-sygoing.link/link/5783347-katies-journey</link>
    <description>Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.</description>
    <pubDate>Sun, 28 Jul 2024 15:42:15 -0400</pubDate>
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