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    <title>Caleb&#039;s Courage</title>
    <link>https://e-sygoing.link/link/5783212-calebs-courage</link>
    <description>A baby&#039;s fight with MPS I, Hurler Syndrome.  Information on the disease and links to other children fighting disease.</description>
    <pubDate>Sat, 25 Oct 2025 04:01:53 -0400</pubDate>
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    <title>Maddy&#039;s Page</title>
    <link>https://e-sygoing.link/link/5783204-maddys-page</link>
    <description>The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.</description>
    <pubDate>Thu, 23 Oct 2025 14:38:14 -0400</pubDate>
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    <title>Robert Kenneth Picklesimer</title>
    <link>https://e-sygoing.link/link/5783206-robert-kenneth-picklesimer</link>
    <description>Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky.  He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.</description>
    <pubDate>Thu, 19 Dec 2024 01:49:33 -0500</pubDate>
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    <title>MCAD Angel</title>
    <link>https://e-sygoing.link/link/5783209-mcad-angel</link>
    <description>Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.</description>
    <pubDate>Sat, 27 Apr 2024 18:17:52 -0400</pubDate>
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