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  <title>e-sygoing.link — Leukodystrophy</title>
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  <description>Latest links in the Leukodystrophy category</description>
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  <lastBuildDate>Sun, 24 May 2026 19:06:27 -0400</lastBuildDate>
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    <title>United Leukodystrophy Foundation</title>
    <link>https://e-sygoing.link/link/5778745-united-leukodystrophy-foundation</link>
    <description>Nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in their health.</description>
    <pubDate>Thu, 12 Mar 2026 11:30:53 -0400</pubDate>
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    <title>Devoted to Brianna</title>
    <link>https://e-sygoing.link/link/5778749-devoted-to-brianna</link>
    <description>Medical experiences and terminology helpful for parents to understand and cope with genetic disorders. One little girl&#039;s story, concerning Canavan Leukodystrophy offers help and hope to many.</description>
    <pubDate>Fri, 07 Nov 2025 04:44:53 -0500</pubDate>
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    <title>Dylan Samuel Freeman</title>
    <link>https://e-sygoing.link/link/5778754-dylan-samuel-freeman</link>
    <description>Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs.</description>
    <pubDate>Thu, 20 Mar 2025 21:16:26 -0400</pubDate>
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    <title>Joe Johnson and the Call Again Soon BBS</title>
    <link>https://e-sygoing.link/link/5778744-joe-johnson-and-the-call-again-soon-bbs</link>
    <description>Directed at making life better for people affected by Leukodystrophy and those who know and love them.</description>
    <pubDate>Fri, 03 May 2024 11:30:38 -0400</pubDate>
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    <title>Aicardi-Goutieres Syndrome</title>
    <link>https://e-sygoing.link/link/5778747-aicardi-goutieres-syndrome</link>
    <description>News, descriptions, contacts, and other information concerning this leukodystrophy.</description>
    <pubDate>Sat, 23 Mar 2024 23:08:37 -0400</pubDate>
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