Genetic Disorders
Alliance of Genetic Support Groups
National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic cond…
Chromosome 22 Central
Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome…
Chromosome Deletion Outreach, Inc. (CDO)
Non-profit voluntary support group for families affected by rare chromosome disorders.
Chromosome Help-Station
Information on rare chromosomal disorders. Support and advice for families.
Cornelia de Lange Syndrome (CdLS) Foundation Outreach
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people wi…
Distal Trisomy 10q Families
Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
Forum for Patients with Myotonic Dystrophy 2
A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
Lafora body disease research talk
This is a discussion group about lafora body disease.
Online Genetic Syndrome Support Groups
Sites are listed alphabetically by disease/condition.
Oto-Palatal-Digital Syndrome Family Resource Network
Resources, articles, support and general information on the rare disorder, Oto-Palatal-Digital Syndrome.
Parents of Polydactyly and Webbed Children
A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others
Peter's Anomaly Support Group
An online support group for people dealing with Peter's Anomaly.
Philadelphia, PA., Internet Support For Invisible/Hidden Disabilities
The Philadelphia, PA., Internetsupport For invisible/hidden disabilities.
The Rainbow
A forum for people who have chromosome abnormalites to show support, give advice and comfort.
Thomas Scott Davidson
This is a memorial website for Thomas Scott Davidson who died from Anencephaly.
Trisomy 18 Angel
This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.
Trisomy 18 Moms
A place to list your Trisomy 18, Edwards syndrome memorial site , get help making a website, to share your unique story via the web.
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