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Fibrodysplasia Ossificans Progressiva

3 links
IFOPA - International Fibrodysplasia Ossificans Progressiva Association
ifopa.org

Support group for families. Information about the condition, treatment, and research efforts.

161 visits May 23, 2024 Details
McKay Orthopaedic Research Laboratory
uphs.upenn.edu

Summaries of current research projects at the University of Pennsylvania.

264 visits Apr 17, 2026 Details
SFGate
sfgate.com

San Francisco Chronicle article describes the disease, includes anecdotes about the lives of several patients.

222 visits Mar 7, 2024 Details

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