Osteogenesis Imperfecta
Brittle Bone Society
The UK charity providing support for people with osteogenesis imperfecta.
Children's Brittle Bone Foundation Website
US organization. Online grant and fellowship applications with news about recent and upcoming events.
Osteogenesis Imperfecta Federation Europe
Information on Osteogenesis Imperfecta around Europe
Osteogenesis Imperfecta Foundation
Supports and encourages medical research and disseminates information to patients, their families, and medical professionals
Osteogenesis Imperfecta Information
Resources gathered by the mother of a child with the disease. Includes a personal page about her son Jojo, his disease, treatment, and progress.
Osteogenesis Imperfecta: The Links to Nutrition
Reviews the possible role of nutrition in this disorder. Questions whether it is solely a genetic condition.
The Bone Page
Bisphosphonate FAQ, bone density, and other information for families dealing with OI.
The Osteogenesis Imperfecta Mailing List
For the discussion of any issues relating to OI. Open to both professionals and families.
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