American Heart Association - Marfan's Syndrome
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
Marfan Syndrome Forum
Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.
The Mystery of Akhenaten: Genetics or Aesthetics?
A history of the pharoah along with theories applied to what he may have had, including Marfan's.