Marfan Syndrome
A Diary about Marfan's
Marfan's patients diary of the diseases events in her life. Includes a list of links.
American Heart Association - Marfan's Syndrome
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
Central Ohio Marfan Support Group
Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
Guide to Marfans Syndrome
Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
Life and Issues of Marfan's Syndrome
Personal site by which describes the pathology and gives a bit of advice.
Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
Marfan Association UK
The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
Marfan Syndrome Forum
Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
Marfan-List
Information about an e-mail mailing list. Also includes links to other online support groups.
Marfans Research Foundation
Irish charity with information on fund raising activities and the condition.
MFS Type 1 Fibrillin Gene
A comprehensive site including major resources listed as well as genetic information.
National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.
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