"China Doll" Syndrome
Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the prob…
Department of Pathology
Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares sy…
Diagnose-Me: Treatments: Prolotherapy
Some EDS patients have obtained excellent results with prolotherapy treatments.
EDS Living - a Journal
Learn what it's like to live with EDS for this woman and her children by following her online journal.
Ehlers-Danlos National Foundation
American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional suppor…
Ehlers-Danlos Syndrome Medical Information
Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more.
Ehlers-Danlos Syndrome Support Group
This site offers extensive information for patients and doctors, plus links.
Ehlers-Danlos Syndrome, Philadelphia Chapter
Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities.
Electronic Textbook of Hand Surgery
Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are t…
eMedicine - Ehlers-Danlos Syndrome
Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
Hypermobility Forum
This is a moderated discussion board for Hypermobility Syndrome, Marfan, and Ehlers-Danlos. Includes personal experiences, traditional and alternative treatment, and pain manageme…
NORD: Ehlers-Danlos Syndrome
Information about EDS from the National Organization for Rare Disorders.
Oral Manifestations of Ehlers-Danlos Syndrome
EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.
Sandy Simmons' Connective Tissue Disorder Site
Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)
The Canadian Ehlers-Danlos Association
Working together to provide assistance, support and resources for people living with this rare genetic disorder.
The Hypermobility Syndrome Association
HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, message boards, and much more.
The Swedish Ehlers-Danlos Syndrome National Association
The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning sympt…
Voluntary Recall of Vioxx
Press release about the recall of Vioxx, a drug commonly used to treat EDS-related arthritis. If you have been taking this medication please contact your doctor immediately for ins…
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