Ehlers-Danlos Syndrome
"China Doll" Syndrome
Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the prob…
American Massage Therapy Association - The Hypermobile Client/Therapist
Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.
Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome
Symptoms, diagnosis and treatment of the condition.
Arthritis Insight-EDS Tips for Surgery
If you or a family member with EDS needs surgery, read this and share it with your doctor.
Coalition for Heritable Disorders of Connective Tissue
Research organization for genetic connective tissue disorders.
Department of Pathology
Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares sy…
Diagnose-Me: Treatments: Prolotherapy
Some EDS patients have obtained excellent results with prolotherapy treatments.
EDS Living - a Journal
Learn what it's like to live with EDS for this woman and her children by following her online journal.
Ehlers Danlos Foundation of New Zealand
Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
Ehlers-Danlos Hope
A Syrian patient gives a personal plea for better medical support and research.
Ehlers-Danlos National Foundation
American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional suppor…
Ehlers-Danlos National Foundation - Michiana Branch
Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.
Ehlers-Danlos Syndrome Information
A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.
Ehlers-Danlos Syndrome Medical Information
Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more.
Ehlers-Danlos Syndrome Support Group
This site offers extensive information for patients and doctors, plus links.
Ehlers-Danlos Syndrome, Philadelphia Chapter
Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities.
Electronic Textbook of Hand Surgery
Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are t…
eMedicine - Ehlers-Danlos Syndrome
Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
HealthWise: Ehlers Danlos Syndrome
Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.
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