3 links
Chase's Story
pierrerobin.com
Personal account of one child's experience of this condition. Includes photographs.
NORD - Pierre Robin Syndrome
rarediseases.org
Sample report, plus links to organisations. [Fee required for full report]
Pierre Robin Network
pierrerobin.org
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
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