Epidermolysis Bullosa

Cristina's Castle in the Clouds

homestead.com

Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.

427 visits Mar 27, 2025 Details

DebRA Australia, Queensland Branch

debraqld.org

Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.

314 visits Mar 7, 2026 Details

DebRA Canada

debracanada.org

Includes articles, news, and information about this genetic disorder.

167 visits May 10, 2025 Details

DebRA International

debra-international.org

Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermol…

460 visits Nov 6, 2024 Details

DebRA of America

debra.org

Offers information, news, newsletters, support, and resources.

256 visits Apr 7, 2026 Details

DebRA UK

debra.org.uk

Features organization background, information about the disorder, fundraising and research details, and news.

211 visits Apr 6, 2026 Details

EB Info World

ebinfoworld.com

Information, mailing list, pictures, and help for new parents.

395 visits Jul 26, 2025 Details

EB Medical Research Foundation

ebkids.org

A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.

424 visits Jul 9, 2024 Details

International EB Forum

internationalebforum.org

Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.

475 visits Aug 30, 2025 Details

Yahoo! Groups: EBworld

health.groups.yahoo.com

Mailing list support group for parents, patients, and those interested in learning about disease.

188 visits Jul 10, 2025 Details

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