3 links
NORD: Proteus Syndrome
rarediseases.org
Offers synonyms, a general discussion and further resources.
Pediatric Oncall
pediatriconcall.com
Find a proteus syndrome case report, including CXR and radiographs.
Proteus Syndrome Foundation
proteus-syndrome.org
Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.