4 links
Hair Shaft Defects - Trichothiodystrophy
keratin.com
Hair and hair disease information with answers to common questions, treatment details, book reviews, web links.
Jeans for Genes Day
mariavamvakinou.com
Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders.
Trichothiodystrophy - Doctor Alfredo Rossi and Doctor C. Cantisani
orpha.net
A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers.