4 links
Caleb's Courage
geocities.com
A baby's fight with MPS I, Hurler Syndrome. Information on the disease and links to other children fighting disease.
Maddy's Page
members.aol.com
The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.
MCAD Angel
mcadangel.com
Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.
Robert Kenneth Picklesimer
picklesimers.com
Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.
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