3 links
Batten Disease Support and Research Association
bdsra.org
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
Nathan's Battle
nathansbattle.com
Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
The Luke and Rachel Batten Foundation
lrbf.org
Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with t…