3 links
Joubert Syndrome Foundation
joubertfoundation.com
Organization, conferences and contact details. FAQs about the disease, information center and resources.
National Library of Medicine: Joubert syndrome
nlm.nih.gov
Synonyms, a summary and a list of major features for this disorder.
TheFetus.net
thefetus.net
A detailed look at Joubert Syndrome starting with a definition, etiology, prenatal diagnosis, clinical findings, genetics and prognosis.