3 links
Ara Parseghian Medical Research Foundation
parseghian.org
About this foundation whose goal is to find a cure for the devastating Niemann-Pick Type C disease.
International Center for Types A and B Niemann-Pick Disease
mssm.edu
Provides information on the prevention and treatment of this disorder for patients, physicians and scientists.
National Niemann-Pick Disease Foundation
nnpdf.org
Provides in depth education and support for patients and families. Also information about the foundation itself.